international dermatology outcome measures

Publications

Protocol for the development of a core domain set for hidradenitis suppurativa trial outcomes. BMJ Open 2017;7(2):e014733Thorlacius L, Ingram JR, Garg A, Villumsen B, Esmann S, Kirby JS, Gottlieb AB, Merola JF, Dellavalle R, Christensen R, Jemec GBE.

Towards global consensus on core outcomes for Hidradenitis Suppurativa research: An update from the HISTORIC consensus meetings I and II. Br J Dermatol. 2018;178(3):715-721. Thorlacius L, Garg A, Ingram JR, Villumsen B, Theut Riis P, Gottlieb AB, Merola JF, Dellavalle R, Ardon C, Baba R, Bechara FG, Cohen AD, Daham N, Davis M, Emtestam L, Fernandez-Penas P, Filippelli M, Gibbons A, Grant T, Guilbault S, Gulliver S, Harris C, Harvent C, Houston K, Kirby JS, Matusiak L, Mehdizadeh A, Mojica T, Okun M, Orgill D, Pallack L, Parks-Miller A, Prens E, Randel S, Rogers C, Rosen CF, Choon SE, van der Zee HH, Christensen R, Jemec GBE. 

 A Core Domain Set For Hidradenitis Suppurativa Trial Outcomes: An International Delphi Process. Br J Dermatol. Status: Accepted for publicationThorlacius L, Ingram JR, Villumsen B, Esmann S, Kirby JS, Gottlieb AB, Merola JF, Dellavalle R, Nielsen SM, Christensen R, Garg A, Jemec GBE, on behalf of the HIdradenitis SuppuraTiva cORe outcomes set International Collaboration (HISTORIC).  

 Reproducibility of outcome measure instruments used in Hidradenitis suppurativa: An agreement and reliability study. Poster, European Academy of Venereology and Dermatology, Vienna. September, 2016. Thorlacius L, Garg A, Theut Riis P, Bettoli V4, Ingram J, del Marmol V, Matusiak L, Pascual JC, Revuz J, Sartorius K, Tzellos T, van der Zee H, Zouboulis CC, Saunte DM, Gottlieb A, Christensen R, Jemec GBE.

Identifying a Core Domain Set to Assess Psoriasis in Clinical Trials: A Combined Delphi Consensus Survey from the International Dermatology Outcome Measures Initiative, JAMA Dermatology
Callis Duffin K, Merola JF, Christensen R, Latella J, Garg A, Gottlieb AB, Armstrong AW


Towards global consensus on core outcomes for hidradenitis suppurativa research:  An update from the HISTORIC consensus meetings I and II
Br. J. Dermatol
L. Thorlacius, A. Garg, J.R. Ingram, B. Villumsen, P. Theut Riis, Alice B. Gottlieb, Joseph F. Mola, Robert Dellavalle, C. Ardon, R. Baba,  F.G. Bechara, A.D. Cohen, N. Daham, M. Davis, L. Emtestam, P. FernandezPenas,. Filippelli, A. Gibbons, T. Grant, S. Guilbault, S. Gulliver, C Harris, C. Harvent, K. Houston, J. S. Kirby, L. Matusiak, A. Mehdizadeh, T. Mojica, M. Okun, D. Orgill, L. Pallack, A. Parks-Miller, E.P. Prens, S. Randell, C. Rogers, C.F. Rosen, S.E. Choon, H.H. van der Zee,, R. Christensen, G.B.E. Jemec

The Psoriatic Disease Payer Advisory Panel
J. Drugs in Dermatol. 15: 641-644, 2016Greb JE, Merola J, Garg A, Latella J, Howard L, Acharya N, Gottlieb AB

Elman SA, Merola JF, Armstrong AW, Callis Duffin K, Latealla J, Garg A, Gottlieb AB:  The International Dermatology Outcome Measures (IDEOM) Initiative:  A Review and Update.  J.Drugs Dermatol.  16:119-124, 2017.

An Update on The IDEOM (International Dermatology Outcome Measures) Initiative to Restructure Current Psoriasis Outcome Assessment Measures to a Globally Uniform Set of Patient-Centric Outcome Measures for Use in Clinical Trials and Clinical Practice

An Update on The IDEOM (International Dermatology Outcome Measures) Initiative to Restructure Current Psoriasis Outcome Assessment Measures to a Globally Uniform Set of Patient-Centric Outcome Measures for Use in Clinical Trials and Clinical Practice
James A. Solomon, M.D., Ph.D., Ryan Schuering, B.S. More, Spring 2015: Psoriasis Forum, Vol. 21, No. 1

Stakeholders working to fill gaps 
in psoriasis research
March 22, 2015: From AAD Annual Meeting News More

The International Dermatology Outcome Measures Group: Formation of patient-centered outcome measures in dermatology
Accepted: November 3, 2014; Published Online: December 06, 2014: JAAD
Alice B. Gottlieb, MD, PhD, Adriane A. Levin, BA, April W. Armstrong, MD, MPH, April Abernethy, MD, Kristina Callis Duffin, MD, MS, Reva Bhushan, MA, PhD, Amit Garg, MD, Joseph F. Merola, MD, MMSc, Mara Maccarone, Robin Christensen, MSc, PhD More

Patients become full partners in inflammatory arthritis and psoriasis research
July 15, 2014: Dermatology News: By: Ted Bosworth, Dermatology News Digital Network More

The International Dermatology Outcome Measures initiative as applied to psoriatic disease outcomes: a report from the GRAPPA 2013 meeting
June 2014: J Rheumatol: 41(6):1227-9. doi: 10.3899/jrheum.140176
Gottlieb AB1, Armstrong AW1, Christensen R1, Garg A1, Duffin KC1, Boehncke WH1, Merola JF1, Gladman DD1, Mease PJ1, Swerlick RA1, Rosen CF1, Abernethy A1. More

International group seeks to close gaps in psoriasis research
April 2, 2014: From AAD Summer Academy Meeting News More

 Psoriasis outcome measures: a report from the GRAPPA 2012 annual meeting.
August 2013: J Rheumatol. 2013 Aug;40(8):1428-33. doi: 10.3899/jrheum.130456.
Gottlieb AB1, Armstrong AW. More




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