international dermatology outcome measures


IDEOM Annual Meeting

March 2, 2016
Westin Washington, DC City Center
1400 M St NW
Washington, DC 20005


      2016 Meeting

The annual meeting of IDEOM was held on March 2, 2016, at the Westin Washington, DC City Center in Washington DC. After an introduction about what IDEOM does, the meeting continued with Leah Howard, from the National Psoriasis Foundation (NPF), presenting data on how payers assess quality of treatments in psoriasis.  Then, Dr. Kendall Marcus, Head of the U.S. Food and Drug Administration’s (FDA) Dermatology Division, gave a presentation on outcomes in dermatology.  The rest of the morning and part of the afternoon showcased results of our most recent DELPHI exercise.  We did live DELPHI exercises at this meeting and hopefully will choose our final list of domains and discuss next steps.  During lunch and breaks, attendees were able to view posters containing submitted outcomes research in dermatology.  Towards the latter part of the afternoon, the Hidradenitis Suppurativa (HS) working group discussed its goals and next steps.  The Acne Outcomes Research Group (ACORN) presented their work and discussed how IDEOM can help them in their efforts.


Date:  Wednesday, March 2, 2016            Time:   8:00am – 6:00pm

The Westin Washington, D.C. City Center
1400 M Street Northwest
Washington, D.C. 20005 USA


7:30 – 8:30am           Registration and Breakfast / Poster Session

8:30 – 8:40am           Welcome Remarks, Alice Gottlieb Presentation

8:40 – 9:00am           Payers Perspective Update, Leah Howard, NPF Presentation

9:00 – 10:00am        FDA Report, Kendall Marcus, Director, Division of Dermatology and Dental Products (DDDP)

10:00 – 10:30am      Coffee Break and Poster Session

10:30am – 12:00pm Introductions and Overview of PsO Working Group and Overview of Methodology   Kristina Callis Duffin and April Armstrong Presentation

12:00 – 1:00pm        Lunch and Poster Session

1:00 – 2:00pm          Delphi Results, Kristina Callis Duffin and April Armstrong Presentation

2:00 – 3:00pm          PsO Core Domains and Moving Forward, Kristina Callis Duffin and April Armstrong

3:00 – 3:15pm          Voting on PsO Domains via ARS (Audience Response System) Presentation

3:15 – 3:45pm          Coffee Break and Poster Session

Hidradenitis Suppurativa (HS) Working Group

3:45 – 3:55pm          Overview of the HS Working Group’s Charge and Outline of the Research Plan, Amit Garg Presentation

3:55 – 4:15pm          HiSCR Overview, Alexa Kimball

4:15 – 4:35pm          Distinguishing Outcomes for Activity and Scarring,  Joslyn Kirby Presentation

4:35 – 4:55pm          Measurement Properties of Outcome Measures for Hidradenitis Suppurativa: Protocol for a systematic review, Gregor Jemec

4:55 – 5:15pm          Collaboration between IDEOM and CSG-COUSIN, John Ingram Presentation

5:15 – 5:35pm          ACORN (Acne Core Outcomes Research Network), Jerry Tan Presentation

5:35 – 5:55pm          Roadmap for Developing Outcomes in HS, Amit Garg

5:55 – 6:00pm          Closing Remarks, Alice Gottlieb

6:00 – 7:00pm           IDEOM RECEPTION – All INVITED

6:30pm                      B.A.C Meeting with IDEOM Board of Directors – Fireplace Room, Mezzanine Level
7:00pm                      IDEOM Board meeting with Collaborating Groups – Fireplace Room, Mezzanine Level

Thanks to Our Corporate Sponsors & Donors

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