IDEOM: Developing Evidence-Based Outcomes Measures to Evaluate the Impact of Treatments for Patients with Dermatological Diseases

Overview

The body of evidence on outcomes measures for dermatological diseases varies widely and lacks agreement on standardized measures. This absence of evidence-based, consensus-driven, and widely accepted outcomes measures may impede patients from receiving access to the most effective and appropriate treatments available. Without such outcomes measures, researchers and health care providers lack critical benchmarks for making treatment recommendations and evaluating patient progress, and payers lack the information needed to determine the efficacy of various treatments, information that is key to shaping payment policies. Given the higher prices associated with many dermatology treatments and a misperception that many conditions are “cosmetic,” the absence of clear outcomes measures could result in payers providing minimal to no coverage for various therapies, curtailing patient access to care.

Leading the Way for Outcomes Measures in Psoriasis, Dermatology and Beyond

The founders of IDEOM are confident that through a focused, inclusive, transparent, and evidence-based effort, the community will make significant progress in establishing outcomes measures in psoriasis, dermatology, and beyond. Achieving success requires that all key stakeholders (including patient, physician, industry, insurer, and government) participate in the process to ensure the outcomes will be useful and achieve intended results.

Outcome Measures in Rheumatology

Board of Directors

Board members are volunteers who approve and evaluate the long-term vision for the organization as well as have financial oversight.

Alice Gottlieb

PRESIDENT
Alice Gottlieb, MD, PhD

April W Armstrong

SECRETARY
April W. Armstrong, MD, MPH

dan siegel

Daniel Siegel
MD, MA, FAAD

John Latella

PATIENT RESEARCH PARTNER
John Latella, BS, MS

viebeke strand

Vibeke Strand MD, FACP, MACR

Joseph Merola

TREASURER
Joseph Merola, MD, MMSC

lesley carpenter grilli

Interim Board Member
Patient Research Partner
Lesley Carpenter Grilli

RESEARCH FELLOWS

perez-chada

Lourdes Perez-Chada, MD, MMSC

kohn

Alison H. Kohn
M.D. Candidate
Class of 2022


STAFF

Amanda Pacia

IDEOM ASSOCIATION MANAGER
Amanda Pacia

Amanda@dermoutcomes.org
Cell: (650) 288-5339

Scientific Advisory Board of Directors

William Ju, MD, FAAD

Jerry Tan, MD, FRCPC

Gregor Jemec, MD, DMSci

Joslyn Kirby, MD, MEd, MS