IDEOM: Developing Evidence-Based Outcomes Measures to Evaluate the Impact of Treatments for Patients with Dermatological Diseases

Overview

The body of evidence on outcomes measures for dermatological diseases varies widely and lacks agreement on standardized measures. This absence of evidence-based, consensus-driven, and widely accepted outcomes measures may impede patients from receiving access to the most effective and appropriate treatments available. Without such outcomes measures, researchers and health care providers lack critical benchmarks for making treatment recommendations and evaluating patient progress, and payers lack the information needed to determine the efficacy of various treatments, information that is key to shaping payment policies. Given the higher prices associated with many dermatology treatments and a misperception that many conditions are “cosmetic,” the absence of clear outcomes measures could result in payers providing minimal to no coverage for various therapies, curtailing patient access to care.

Leading the Way for Outcomes Measures in Psoriasis, Dermatology and Beyond

The founders of IDEOM are confident that through a focused, inclusive, transparent, and evidence-based effort, the community will make significant progress in establishing outcomes measures in psoriasis, dermatology, and beyond. Achieving success requires that all key stakeholders (including patient, physician, industry, insurer, and government) participate in the process to ensure the outcomes will be useful and achieve intended results.

Outcome Measures in Rheumatology

Board of Directors

Board members are volunteers who approve and evaluate the long-term vision for the organization as well as have financial oversight.

Alice Gottlieb

PRESIDENT
Alice Gottlieb, MD, PhD

Professor of Dermatology
New York Medical College Valhalla, NY
alice.gottlieb@gmail.com

Dr. Gottlieb is a Professor of Dermatology at New York Medical College. Dr. Gottlieb is an internationally recognized leader in psoriasis and psoriatic arthritis research. She is an expert in the concept of psoriasis as an immune mediated disease and the treatment of the disease with targeted immunotherapies. She is board certified in Dermatology, Rheumatology and Internal Medicine.

Amit Garg

Amit Garg, MD

500 Hofstra University
Hempstead, NY 11549
amgarg@Northwell.edu

Dr. Garg is an Associate Professor and the Founding Chair of the Department of Dermatology, Hofstra North Shore-LIJ School of Medicine. Dr. Garg is a recognized clinical leader in the treatment of psoriasis and psoriatic arthritis. He co-directs an interdisciplinary clinic with Rheumatology devoted to caring for patients with psoriasis, psoriatic arthritis, among other interrelated skin and musculoskeletal diseases. Dr. Garg’s research interests include developing instruments and assessing clinical and patient centered outcomes in psoriasis and psoriatic arthritis.

Joseph Merola

TREASURER
Joseph Merola, MD, MMSC

Bringham and Women’s Hospital
75 Francis Street, Boston, MA 02114
jfmerola@bwh.harvard.edu
jfmerola@partners.org

Dr. Merola is Assistant Professor at Harvard Medical School, Director of Clinical Trials, Dermatology, Co-Director, Center for Skin and Related Musculoskeletal Diseases, Department of Dermatology and Department of Medicine, Division of Rheumatology, Associate Program Director, Combined Medicine-Dermatology Residency Program, Brigham and Women's Hospital. Dr. Merola's research interests include outcome measures and clinical trials in dermatology and rheumatology, with a focus on psoriasis and psoriatic arthritis and systemic and cutaneous lupus. He is board certified in Dermatology, Rheumatology and Internal Medicine.

April W Armstrong

April W. Armstrong, MD, MPH

Keck School of Medicine
University of Southern California
1975 Zonal Avenue, KAM 500 MC 9034
Los Angeles, CA 90089
aprilarmstrong@post.harvard.edu

Dr. Armstrong is Associate Dean for Clinical Research, Director of Clinical Research, Southern California Clinical and Transitional Science Institute (SC CTSI), Vice Chair, Director, Clinical Trials and Outcomes Research, Director, Psoriasis Program, Department of Dermatology, Keck School of Medicine at USC University of Southern California. Dr. Armstrong has expertise in outcomes research, psoriasis, and technology-enabled delivery of healthcare. She has authored over 130 peer-reviewed scientific publications and has been an editor for the top pharmacology textbook Principles of Pharmacology​.

John Latella

PATIENT RESEARCH PARTNER
John Latella, BS, MS

jlatella@hotmail.com

John J. Latella, BS & MS in Education. Mr. Latella has been a patient for 51 years with Psoriasis, and 39 Years with Psoriatic Arthritis. He is a Patient Research Partner and stakeholder with IDOM and has been active Member of the National Psoriasis Foundation since 2004 as an Advocate, Mentor and Ambassador.

Amanda Pacia

IDEOM ASSOCIATION MANAGER
Amanda Pacia

Amanda@dermoutcomes.org
Cell: (650) 288-5339
Fax: (650) 347-4975